Resource Links
This Resource List of Links is designed to be a living, growing collection of helpful information. Resources related to planning, decision-making, and end-of-life considerations. And all with a special focus on Alzheimer’s disease and the Dementia journey. As new resources are discovered, recommended, or discussed, they will be added here. Come back often as this page will continue to evolve over time. The goal is to create a practical, go-to hub for families navigating difficult choices, not just medical information. If you’ve come across a resource that was helpful to you, please share it. Your contribution could make a meaningful difference for someone else facing similar decisions.
Amazon Affiliate Link: https://amzn.to/43tLQgP
Whole-Body Donation
MedCure
https://medcure.org/
Whole Body Donation Provider
Limited to Nevada, Florida, Missouri, and Oregon
Science Care
https://www.sciencecare.com/
Body Donation to Science Provider
Limited to all US States except: AK, AR, HI, ME, MN, MT, NJ, NM, ND, and OK
United Tissue Network
https://unitedtissue.org/
Whole Body Donation for Medical Education & Science
Limited to Arizona and Florida
The Horrors of Body Donation
Article by Akshat Shah, a second-year law student at Cornell Law School.
Published March 21, 2024
End of Life Options
Final Exit Network
https://finalexitnetwork.org/
Final Exit Network, Inc. is an American 501 nonprofit right to die advocacy group incorporated under Florida law. It holds that mentally competent adults who suffer from a terminal illness, intractable pain, or irreversible physical conditions have a right to voluntarily end their lives.
Exit International
https://www.exitinternational.net
Exit International is an international non-profit organization advocating legalization of voluntary euthanasia and assisted suicide. It was previously known as the Voluntary Euthanasia Research Foundation.
Peaceful Pill Handbook
https://www.peacefulpillhandbook.com
Leading guidebook to provide practical, DIY information about end of life methods.
Final Exit 2020 – eBook
https://www.finalexit.org/ergo-store
This new version of the famous guide “Final Exit” has been called a suicide handbook, yet readers will find that it is powerfully addressed to terminally and hopelessly ill adults who have fought for life and no longer wish to suffer.
Jean’s Way – eBook
https://www.finalexit.org/ergo-store
This is the true, moving account of a woman with advanced terminal illness who planned to hasten her end with the help of her husband, Derek Humphry. Not only was assisted suicide against the law but it was also a huge taboo. Both in the application of the new Oregon law and Swiss law, with legally approved ways of assisting deaths at the end of life, Jean’s way is the method used. In Switzerland it is used by DIGNITAS and EXIT.
Going to Switzerland – How to Plan your Final Exit
https://www.goingtoswitzerland.net/
The book explains the services on offer to foreigners, qualification criteria (especially as it pertains to a mental health diagnosis, including dementia/ Alzheimer’s), the requirements to be accepted (eg. get the ‘green light’) and the different methods used.
Dignitas
https://dignitas.ch/en/
To live with dignity – To die with dignity
Helium Suicide, a Rapid and Painless Asphyxia: Toxicological Findings
https://www.mdpi.com/1748250
Referenced Sources
PBS Interview with Ludwig Minelli, Dignitas Founder
https://www.pbs.org/wgbh/pages/frontline/suicidetourist/etc/minelli.html
The Guardian Interview with Ludwig Minelli, Dignitas Founder
A little sightseeing, a glass of schnapps, then a peaceful death in a suburban flat
Suicide Data and Statistics
https://www.cdc.gov/suicide/facts/data.html
Suicide is One of the Leading Causes of Death in the United States
https://www.nimh.nih.gov/health/statistics/suicide
Yale Study Finds Elevated Suicide Risk for Older Adults Diagnosed With Dementia
https://medicine.yale.edu/news-article/yale-study-finds-elevated-suicided-risk-for-older-adults-diagnosed-with-dementia/
Alzheimer’s stages: How the disease progresses
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers-stages/art-20048448
High blood pressure and the risk of dementia
https://www.alzheimers.org.uk/about-dementia/managing-the-risk-of-dementia/reduce-your-risk-of-dementia/high-blood-pressure
Sprint for Discovery: New Dementia and Cardiovascular Findings
https://www.alz.org/blog/alz/july_2018/sprint_for_discovery_new_dementia_and_cardiovascu
